Share your story to help others and raise public awareness of smell loss. Gathering data and building a profile of the long-term outcomes for your sense of smell – and your wellbeing – can help us to build up a detailed picture of smell loss and how it affects the population.
In this research survey we will be collecting information about demographic factors and several aspects of your chemosensory (smell and taste) perception/experience. This study is being conducted by researchers at the University of Tennessee, Knoxville and researchers at AbScent, a UK-based charity. We encourage you to follow your intuition and be honest when answering, however we kindly ask that you not omit any questions. Thank you!
INFORMATION ABOUT PARTICIPANTS' INVOLVEMENT IN THE STUDY
Before completing the survey, let’s discuss some of the points of interest in our research. The first survey section will ask you questions about demographics [gender, age, height, weight, and nationality]. Next, you will be asked a series of questions in several sections: general, parosmia, fleeting whiffs/smell locks, smell training and quality of life. The general category will inquire broadly about smell and taste issues experienced while the other sections will have more specific questions related to the section name. The average time to complete the survey will be 15 -20 minutes.
The risks associated with this study are minimal and no more than encountered in everyday life.
This research will provide future direction for scientific and medical communities in understanding chemosensory (smell and taste) disorders.
All participants will have access to aggregated data related to the study, in addition to AbScent membership benefits. If you wish to have access to these benefits but do not wish to complete the survey, please contact the investigator at firstname.lastname@example.org who will assist you.
Your responses will not be linked to any identifiable information. Therefore, after you submit the survey, we cannot remove your responses as we will not know which responses belong to you. Data will be stored securely and will be made available only to persons conducting the experiment. No reference to identifiable information will be made in oral or written reports which could link participants to the study. Your survey records will be kept for 3 years.
If you have questions at any time about this study, you may contact the researcher, Bob Pellegrino, at email@example.com, or (865) 974- 7270. If you have questions about your rights as a participant, you may contact the University of Tennessee IRB Compliance Officer at firstname.lastname@example.org or (865) 974-7697.
Your participation is voluntary. You can decline to participate or end your participation at any time with no penalty. If you withdraw from the study before data collection is completed your data will be deleted and you will be redirected to the paid-for membership area. If you decide to not to participate or withdraw from the study before completion, this will not affect your relationship with AbScent nor the ability to receive services from them in the future.
I have read this form, been given the chance to ask questions and have my questions answered. If I have more questions, I have been told who to contact. By clicking the “I Agree” button below, I am agreeing to be in this study. I can print or save a copy of this consent information for future reference. If I do not want to be in this study, I can close my internet browser.