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FAQs

About your condition

General questions

How did I lose my sense of smell?

There are a number of ways you can lose your sense of smell. The most common causes are:

An upper respiratory tract infection (such as a cold, or the flu)

A blow to the head

Other sinus diseases and conditions such as rhinosinusitis or polyps

Allergies, medications and cancer treatment can also play a role

In some cases, loss of smell can be an indicator of neurodegenerative disease such as Parkinson’s and Alzheimer’s disease

For a full list of the causes of smell loss see here

Will I ever recover? How long will it take?

In the vast majority of cases smell loss is temporary. However, recovery can take a long time - sometimes years.

Why do I feel so terrible?

Losing your sense of smell can make it hard to cope. Smell and emotion are closely linked in the brain. If you are struggling with overwhelming and negative feelings, it's important to talk to your doctor.

 

 

How can I help myself?

The best way to help yourself is to be well-informed.

Read up on your type of smell loss and make careful notes if that helps

Keeping a diary to record your smell sensations will help you see any changes in the way you are experiencing smell

Try not to assume that you will remember what you can smell today in a few weeks

Don’t give up asking for help. A diary can help you chart your progress and can be useful when you’re meeting healthcare professionals.

I can’t taste anything. Have I lost my sense of smell *and* taste? 

Many people think that they have lost both their sense of smell and taste and say that they “can’t taste anything”. However, generally it is only the sense of smell that is lost.
 
In order to recognise what is happening, it’s important to understand the technical definitions, and differences between, the experiences of both taste and smell:

  • True taste refers to that experience we have on the tongue and in the mouth: salty, sweet, sour, bitter and savoury (umami). The tongue has receptors for these basic tastes and other things like creaminess. Even without smell we can experience these sensations. Most people with smell loss can still tell the difference between sugar and salt, for example.
  • Smell happens either when we sniff something (also called ortho-nasal olfaction), or when we chew food and the molecules that deliver smell waft up the back of our throat (also called retro-nasal olfaction).

It’s the combination of both true taste (salty, sweet, sour, bitter and savoury) and retro-nasal olfaction that equals flavour. And it is flavour that disappears with smell loss. Because flavour happens in the mouth people often wrongly assume that their sense of taste has gone. However, in most cases, people with smell loss will retain their full sense of taste.

Ageusia and dysgeusia are the terms given to dysfunctions of taste.

There are a number of ways you can lose your sense of smell. The most common causes are:

An upper respiratory tract infection (such as a cold, or the flu)

A blow to the head

Other sinus diseases and conditions such as rhinosinusitis or polyps

Allergies, medications and cancer treatment can also play a role

In some cases, loss of smell can be an indicator of neurodegenerative disease such as Parkinson’s and Alzheimer’s disease

For a full list of the causes of smell loss see here

In the vast majority of cases smell loss is temporary. However, recovery can take a long time - sometimes years.

Losing your sense of smell can make it hard to cope. Smell and emotion are closely linked in the brain. If you are struggling with overwhelming and negative feelings, it's important to talk to your doctor.

 

 

The best way to help yourself is to be well-informed.

Read up on your type of smell loss and make careful notes if that helps

Keeping a diary to record your smell sensations will help you see any changes in the way you are experiencing smell

Try not to assume that you will remember what you can smell today in a few weeks

Don’t give up asking for help. A diary can help you chart your progress and can be useful when you’re meeting healthcare professionals.

Many people think that they have lost both their sense of smell and taste and say that they “can’t taste anything”. However, generally it is only the sense of smell that is lost.
 
In order to recognise what is happening, it’s important to understand the technical definitions, and differences between, the experiences of both taste and smell:

  • True taste refers to that experience we have on the tongue and in the mouth: salty, sweet, sour, bitter and savoury (umami). The tongue has receptors for these basic tastes and other things like creaminess. Even without smell we can experience these sensations. Most people with smell loss can still tell the difference between sugar and salt, for example.
  • Smell happens either when we sniff something (also called ortho-nasal olfaction), or when we chew food and the molecules that deliver smell waft up the back of our throat (also called retro-nasal olfaction).

It’s the combination of both true taste (salty, sweet, sour, bitter and savoury) and retro-nasal olfaction that equals flavour. And it is flavour that disappears with smell loss. Because flavour happens in the mouth people often wrongly assume that their sense of taste has gone. However, in most cases, people with smell loss will retain their full sense of taste.

Ageusia and dysgeusia are the terms given to dysfunctions of taste.

Understanding a diagnosis

Is it worth going to the doctor?

Yes. It’s very important to mention a change in your sense of smell to your doctor in order to determine its cause and potential outcomes. A change in the sense of smell can be the result of a virus or a physical trauma,  or can be an early indicator of other diseases. 

My doctor doesn’t think smell loss is important. What should I do?

If you’ve already seen your GP and they don’t seem to think your condition is important, it might be worth making a second appointment. It may help to download the Patient and GP discussion brochure and take this with you when you go.

The emotional impact of smell loss can have profound consequences for your quality of life, and this should be taken seriously.

What’s the best way to speak to my doctor?

It’s important to explain clearly how smell loss has affected your life. Is it causing low mood? Do you find yourself thinking about your smell loss throughout the day? Are you feeling anxious about safety issues? Have there been changes in your social life and your interactions with people?

Are you worried that it will affect your job? These are all valid reasons for mentioning smell loss to your doctor. 

It may help to download this brochure and take it with you when you visit your doctor

Which are the best clinics for this condition? Is there one near me?

You can find a list of clinics here.

Where can I get tested?

At the moment, the only place where you can be tested for smell loss is at a specialist clinic. There are a number of tests available, and the test you receive will depend on your geographic location.

In Europe, the ‘Sniffin’ Sticks’ test is the standard. This takes about an hour and measures threshold, discrimination and identification. The UPSIT (University of Pennsylvania Smell Identification Test) is a scratch and sniff card with multiple choice for identification of smells.

There are a number of other tests available, some specific to individual countries, such as the Scandinavian Odour Identification Test (SOIT). If you don’t have access to a clinic, you can download a simple self-assessment form here. Please see the list of clinics here.

Yes. It’s very important to mention a change in your sense of smell to your doctor in order to determine its cause and potential outcomes. A change in the sense of smell can be the result of a virus or a physical trauma,  or can be an early indicator of other diseases. 

If you’ve already seen your GP and they don’t seem to think your condition is important, it might be worth making a second appointment. It may help to download the Patient and GP discussion brochure and take this with you when you go.

The emotional impact of smell loss can have profound consequences for your quality of life, and this should be taken seriously.

It’s important to explain clearly how smell loss has affected your life. Is it causing low mood? Do you find yourself thinking about your smell loss throughout the day? Are you feeling anxious about safety issues? Have there been changes in your social life and your interactions with people?

Are you worried that it will affect your job? These are all valid reasons for mentioning smell loss to your doctor. 

It may help to download this brochure and take it with you when you visit your doctor

You can find a list of clinics here.

At the moment, the only place where you can be tested for smell loss is at a specialist clinic. There are a number of tests available, and the test you receive will depend on your geographic location.

In Europe, the ‘Sniffin’ Sticks’ test is the standard. This takes about an hour and measures threshold, discrimination and identification. The UPSIT (University of Pennsylvania Smell Identification Test) is a scratch and sniff card with multiple choice for identification of smells.

There are a number of other tests available, some specific to individual countries, such as the Scandinavian Odour Identification Test (SOIT). If you don’t have access to a clinic, you can download a simple self-assessment form here. Please see the list of clinics here.

Interventions

I’ve been prescribed steroids, will they help?

Steroids reduce inflammation. They are prescribed either in tablet form or in a nasal spray/nose drops. They are often prescribed by ENT doctors.

They can be used as a course of tablets, with the dose tapering after a number of days. There are side-effects, however, so your doctor will need to discuss these with you so that you can make an informed decision.

Applying steroids directly to the nose means fewer side-effects, but application needs to be done properly so that the product gets where it needs to go and doesn’t either run down the back of the throat or out of your nose .

Find out more about how to use drops and sprays correctly.

For more information, click here to read an interview with Simon Gane of the Royal National Trhoat, Nose and Ear on the use of steroids for patients with smell loss.

Does Vitamin A work? Where can I get it?

Because Vitamin A plays a role in the regeneration of olfactory neurons, Vitamin A nose drops are sometimes used as a treatment for post-viral smell loss. However, they aren’t available everywhere.

For more information, click here to read an interview with Katherine Whitcroft, ENT and researcher, on the use of Vitamin A.

Does Alpha lipoic acid work?

The evidence to support the use of alpha lipoic acid (ALA) has been inconclusive but you can give a try and see for yourself. Use dosages as listed on the label.

Do zinc supplements help?

A deficiency of zinc can lead to disturbances in sense of smell, so a supplement might help if you have low zinc levels. It’s a good idea to check with your doctor first.

Is it ok to try complementary treatments such as herbal supplements, aromatherapy or acupuncture?

As with anything, if you are going to try a complementary therapy, then make sure you follow the directions carefully, and always speak to a qualified practitioner. It’s a good idea to check with your GP first.

Steroids reduce inflammation. They are prescribed either in tablet form or in a nasal spray/nose drops. They are often prescribed by ENT doctors.

They can be used as a course of tablets, with the dose tapering after a number of days. There are side-effects, however, so your doctor will need to discuss these with you so that you can make an informed decision.

Applying steroids directly to the nose means fewer side-effects, but application needs to be done properly so that the product gets where it needs to go and doesn’t either run down the back of the throat or out of your nose .

Find out more about how to use drops and sprays correctly.

For more information, click here to read an interview with Simon Gane of the Royal National Trhoat, Nose and Ear on the use of steroids for patients with smell loss.

Because Vitamin A plays a role in the regeneration of olfactory neurons, Vitamin A nose drops are sometimes used as a treatment for post-viral smell loss. However, they aren’t available everywhere.

For more information, click here to read an interview with Katherine Whitcroft, ENT and researcher, on the use of Vitamin A.

The evidence to support the use of alpha lipoic acid (ALA) has been inconclusive but you can give a try and see for yourself. Use dosages as listed on the label.

A deficiency of zinc can lead to disturbances in sense of smell, so a supplement might help if you have low zinc levels. It’s a good idea to check with your doctor first.

As with anything, if you are going to try a complementary therapy, then make sure you follow the directions carefully, and always speak to a qualified practitioner. It’s a good idea to check with your GP first.

Smell training

What is smell training?

Smell training is a technique that can help to stimulate the sense of smell and encourage regeneration of the olfactory nerve. The first scientific research about smell training was published in 2009.

How can smell training work?

Smell training works by stimulating the sense of smell. It is this stimulation of the nerve that encourages regeneration of the olfactory nerve. Think of it as a form of physiotherapy for your nose.

What does it mean to ‘smell mindfully’?

When smell training, it is important to give your full attention to the task at hand. Try not to have too many other distractions. It may help to close your eyes. Concentrate on what you are doing. Do you experience any sensation at all? Is the smell message indistinct? Not there? Distorted? Whatever your experience, it is important to be accepting of that experience but continue to be curious about it. Try to remain detached, and not get into a negative conversation with yourself because perhaps the smell is not as strong or as pleasant as you would expect it to be. This form of concentration during smell training is similar to a mindfulness practice. You want to increase your awareness of the experience of the moment. Be with your smell experience, whatever it is. 

Do the essential oils need to be organic for smell training to work?

No, they do not. Organic refers to the way the plant materials were grown.

The use of essential oils for smell training is purely as a stimulant for the sense of smell.  In fact, you don't need to use essential oils at all for smell training. Herbs and spices from your pantry would also work. It's not about the *thing* you smell train with, but about the *smelling*

What’s the best way to smell train?

The most important aspect of smell training is to do it regularly (twice daily) for a minimum of four months. You should set aside a regular time of day and make it a routine. Sniff each oil for 20 seconds and then pause for 15 seconds before moving on. First thing on waking and last thing before bed is a good way to start.

The more you smell train, the better the outcome. Once it becomes part of your routine, it can also be fun to add new smells to your line up.

How do I know if smell training is for me?

Smell training might help if you’ve lost your sense of smell after a virus or have received a mild head injury. If you experience any kind of smell messages at all - whether they are indistinct, unrecognisable or distorted - it means you have some limited function of the olfactory nerve. In that case, you could try smell training.

Think of it as a type of physiotherapy for your nose.

How is smell training different from aromatherapy?

Aromatherapy is the belief that different plant oils have specific therapeutic effects on the body, and that different oils have different uses.
 
Smell training only focuses on the specific fragrances of the oils, and not any potential therapeutic effects of them. Smell training isn’t a ‘cure’, more of a ‘workout’ for your nose and the smell-memory area of your brain.

Smell training is a technique that can help to stimulate the sense of smell and encourage regeneration of the olfactory nerve. The first scientific research about smell training was published in 2009.

Smell training works by stimulating the sense of smell. It is this stimulation of the nerve that encourages regeneration of the olfactory nerve. Think of it as a form of physiotherapy for your nose.

When smell training, it is important to give your full attention to the task at hand. Try not to have too many other distractions. It may help to close your eyes. Concentrate on what you are doing. Do you experience any sensation at all? Is the smell message indistinct? Not there? Distorted? Whatever your experience, it is important to be accepting of that experience but continue to be curious about it. Try to remain detached, and not get into a negative conversation with yourself because perhaps the smell is not as strong or as pleasant as you would expect it to be. This form of concentration during smell training is similar to a mindfulness practice. You want to increase your awareness of the experience of the moment. Be with your smell experience, whatever it is. 

No, they do not. Organic refers to the way the plant materials were grown.

The use of essential oils for smell training is purely as a stimulant for the sense of smell.  In fact, you don't need to use essential oils at all for smell training. Herbs and spices from your pantry would also work. It's not about the *thing* you smell train with, but about the *smelling*

The most important aspect of smell training is to do it regularly (twice daily) for a minimum of four months. You should set aside a regular time of day and make it a routine. Sniff each oil for 20 seconds and then pause for 15 seconds before moving on. First thing on waking and last thing before bed is a good way to start.

The more you smell train, the better the outcome. Once it becomes part of your routine, it can also be fun to add new smells to your line up.

Smell training might help if you’ve lost your sense of smell after a virus or have received a mild head injury. If you experience any kind of smell messages at all - whether they are indistinct, unrecognisable or distorted - it means you have some limited function of the olfactory nerve. In that case, you could try smell training.

Think of it as a type of physiotherapy for your nose.

Aromatherapy is the belief that different plant oils have specific therapeutic effects on the body, and that different oils have different uses.
 
Smell training only focuses on the specific fragrances of the oils, and not any potential therapeutic effects of them. Smell training isn’t a ‘cure’, more of a ‘workout’ for your nose and the smell-memory area of your brain.

Managing smell loss and getting on with life

What should I do if I get another sinus infection? Can I lose my sense of smell twice?

Everyone who has lost their sense of smell from a virus feels anxiety about getting another infection and this is entirely natural. It’s important to remember, however, that smell loss from a virus is actually quite rare and is unlikely to happen twice.

It’s a good idea to take sensible precautions to avoid colds and flu and, if you think you have an infection, arrange to see your doctor for advice.

Click here for more information on managing a cold.

What about a nasal rinse bottle (neti pot)?

Nasal rinse bottles are a great way to keep the nose healthy. A daily rinse (or two) can wash away allergens and excess mucus that would otherwise make your nose drip (post-nasal drip). Not only is nasal rinsing effective, it is inexpensive too. 

Some people feel squeamish about squirting water up their noses, but it usually gets easier once you feel the benefits. Click here to read more.
 
A number of brands of nasal rinses are available. You can buy the pre-mixed packets of rinsing salts or mix your own.

Everyone who has lost their sense of smell from a virus feels anxiety about getting another infection and this is entirely natural. It’s important to remember, however, that smell loss from a virus is actually quite rare and is unlikely to happen twice.

It’s a good idea to take sensible precautions to avoid colds and flu and, if you think you have an infection, arrange to see your doctor for advice.

Click here for more information on managing a cold.

Nasal rinse bottles are a great way to keep the nose healthy. A daily rinse (or two) can wash away allergens and excess mucus that would otherwise make your nose drip (post-nasal drip). Not only is nasal rinsing effective, it is inexpensive too. 

Some people feel squeamish about squirting water up their noses, but it usually gets easier once you feel the benefits. Click here to read more.
 
A number of brands of nasal rinses are available. You can buy the pre-mixed packets of rinsing salts or mix your own.